As I reflected on the life I am living and have lived, it has been a great life. It has been a long life, especially since it was intended to end when I was six. As I reflected on the lifeline I created, it was very much like the heart monitor that we watched for hours on Thursday evening. There were many high peaks and abnormalities. Most people do not lose their parents until much later in life. By learning to live independently in my young childhood, it allowed me to gain many skills of independence that assisted me when my family dropped me off on the side of the road at UF's campus and handed me a folder with all of my important life information. My social security card, a debit card (which I had never had before) and my birth certificate. They were down the road and I heard them shout out the window, "Oh and Happy Birthday." That still sticks with me and teaches me the importance of providing love and compassion. As strong as I was then, my relationship with my family is still very much severed. They were not there for the birth of my daughter and they have yet to come visit me or help me since being in a wheelchair. That is hard. It is also character building.
As I look at my social relationships and roles, I see the importance of putting family first. When I was younger, I cared more about my social standing. Was I a "good enough" person? Was I giving back to the community? Was I the best at my job? Was I getting the promotions I needed to climb that ladder to success?
Today, I ask myself, was I a mom? Was I a wife? Not was I a good wife or a good mom. Just was I alive and able to fill that role. If the answer is yes, then I give myself the grace for making it through the day and pray for another opportunity. Each day I am learning how important it is not to care about being the best but just being and helping others in the process.
That is very different from the patterns prior to my becoming a person within the disabled community. Those peaks of rapid succession were something that I used to pride myself on. Now I realize that while they did provide me opportunities and successes, I missed out a lot on developing life-long relationships. I was driven to succeed and did not previously care as much about my role as a wife. My first husband pales in comparison to the amazing man I have today, but I also did not show him anywhere near the type of love I show Randall. I believe I grew and learned from that experience with divorce and hope to show Randall every single day that I am thankful to be his wife.
In the letter I wrote to Randall in the exercises, I often thanked him for what he has sacrificed and what he has done to keep our relationship alive. He was the one who flew me all the way up to New Hampshire to take a job which would put me over a thousand miles away from him and he was willing to support me and love me through that. He was the only one there when Grace was born. He was the only one there when I found out I had Dysautonomia. Honestly, he is my best friend and my closest connection within my social world.
When it came to reflecting on strengths, I listed Dedication, Loyalty, Optimism, Christ-centered, Humble, Fast Learner, Coach-able, Communicator, Faithful, Visionary. Many years ago those strengths would have been very different. They would have listed "hard worker." I am now realizing that it isn't so much how many hours you put in or how vigorously you work, but how deeply you impact others in the work you do. For example, Randall helped me make it to the National Day of Remembrance event where I was a keynote speaker. During my shortened speech due to health concerns, I knew I couldn't provide the message I wanted to deliver. I had to put that energy into making my message concise and powerful. After delivery, two survivors of the recent PULSE massacre came up to me and gave me a hug and said that the message touched them in a way to give them hope to keep going. How powerful. These two women had witnessed a terror I hope to never experience. Yet, the few words I could speak provided them hope.
Boyatzis and McKee (2005) have this to say of hope. "That magical and life-giving quality called hope is more than just optimism...and it all starts with you." (p. 204) When I was younger, I was uncertain about the impact we could have on others around us. I am now aware that we all play a critical role in each other's lives and the more that we own that responsibility the greater power we have in providing a positive influence of hope in this world.
Now, the next 36 hours after the delivery of that speech have been spent in bed recovering. In retrospect I believe it was worth it. Some would think, including the younger me, that sharing that short speech was far from hard work, but my heart and body would argue that point. That is why today I prefer to speak to the strengths that allow me to get out of bed each day. Those are the ones that I want to continue to develop as I will need that strength for tomorrow.
McKee, Boyatzis and Johnson (2008) discuss understanding the gaps between the real self and the ideal self. Understanding the importance of mindfulness and self-awareness. I believe my biggest gap is still not realizing when I am overdoing it. My body is trying to send a clear message and I am not receiving it well. I believe I am still somewhat in denial. I need to be more mindful of how important my health is and stop pushing myself too much. Perhaps I need to spend more time thinking about how important it is to be here for Grace as she grows and feel less guilt about making deadlines or engagements. For now, it is time to sleep, rest and renew. Good night.
Boyatzis, R., McKee,
A.(2005). Resonant Leadership. Boston, MA: Harvard Business School Pub.
McKee,
A., Boyatzis, R. E., & Johnston, F. (2008). Becoming a resonant leader:
Develop your emotional intelligence,
renew your relationships, sustain your effectiveness. Boston, MA:Harvard Business School Pub.